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Showing posts from June, 2021

Psych issues years before Movement Disorder issues?

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My PD history is unlike any I've read. I started having psych issues: Anger/rage, paranoia, obsessing. My family and close friends thought I was crazy. This started about 8 years before an official diagnosis of Young Onset Parkinson's Disease (YOPD because diagnosed under 50 years old).   The day I started Sinemet in May 2012, I felt euphoric. The Sinemet helped all non-motor issues (listed above), as well as gait, choking, arm swing, facial masking, etc. I have one big favor to ask here, PLEASE tell me I am not the only person where weird psych behavior preceded  the motor symptoms (like gait, arm swing, etc), and by so much time.   THANK YOU.

A grant for therapeutic healing with music?

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I hope this sincere idea helps the disabled get out of their confinements to enjoy some music and social time around others. I had an idea. Instead of someone living on social security disability checks awkwardly asking venues and musicians for guest list to shows and festivals, which impacts the business income, how about a government grant (or a biz/individual philanthropic) for people with brain illness where live music has a documented huge positive impact on their brain health.   Music is scientifically shown to stimulate neuron activity. And fund the cost of the admission for them? At least one of my friends know about grants, can you lend a hand?

Parkinson's Disease: The Song that's Sweeping the Nation

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Three intro to psychology students attempt to explain PD through song.

Amantadine 100mg Capsules ?

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 Anything good or bad to share about Amantadine?  Besides Rytary's price and failing to last more than 2 hours in my system,  I've been having off-times and dosage failures with Rytary.  So I switched back to Sinemet and the MDS added Amantadine which seems to be creating anxiety, not sure if it's actually the new med or something else.  UPDATE: After a week taking Amantadine anxiety settled a bit but on/off times still an issue 😿

Living in Mexico with Parkinson's Disease? Living in MX with any Chronic Illness?

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We're serious about moving to Mexico. I watch videos withpositive and negatives, read stories of others experiences but not much including moving with chronic illness. Unfortunately, Parkinson's has gifted me with anxiety about anything new. So to help my spiraling "What If" anxiety, I'm looking for other's with PD who are living in Mexico that will share their experience. I need to get past the anxiety. I found one blog post about a woman who moved to Mexico. She's living in the retirement community, Lake Chapala. Not exactly looking for Lake Chapala right now but I liked her story because there are many positives to focus on; from the exercise group to the neurologist in Guadalajara specializing in PD and other movement disorders.  Yarnie Journey with Parkinson's (10/2019) Being rational, all the movement disorder specialists I've encountered are making educated guesses about the medications.  None have a box of magic pills or secret spells ...