National Parkinson's Project: Status?

Hello Congress, have any steps been taken since it became law to "end Parkinson's"? Has the changes of power impacted science and treatment? Public Law 118-66 follows Statute at Large 138 Stat. 1443 - Public Law No. 118-66 (07/02/2024)[118th Congress Public Law 66] [From...

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Congress Passed the National Plan to End Parkinson's Act

Big news just in from Michael J. Fox foundationThe U.S. Senate today unanimously passed the National Plan to End Parkinson’s Act, the first-ever federal legislation dedicated to ending Parkinson’s disease, sending the bill to President Biden’s desk to be signed into law. The...

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New C/L Delivery System Sounds Promising

My gut has issues absorbing medications. Sometimes it doesn't seem to get absorbed, other times it can take hours then suddenly the medicine works. My doctor has been telling me about a new deivery system for carbidopa/levadopa that works like diabetes meds, with a tiny...

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World Parkinson's Day and Parkinson's Awareness Month

April 11 is World Parkinson's Day and April is Parkinson's Awareness Month — a time to raise awareness and advance research toward better therapies and a cure for Parkinson's disease (PD). It's also a day to signal your commitment to a future without PD. Rally your friends...

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Parkinson's Hacks Help Man Walk

SCRIPPS News: Man with Parkinson's uses high tech devices to treat symptoms, continue liiving his life. 80% of Parkinson's patients suffer from a symptom called "freezing of gait." It’s when people suddenly lose the ability to take a step.  SOUR...

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Looking at Parkinson's differently. This guy may be onto something?

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DBS? Courage. A second chance to live

DBS is on my mind. I am slowly inching towards the deep brain stimulation. Everyone I speak with has encouraging words.  I MAY BE SCARED. I MAY HAVE ANXIETY. It's freakin' brain surgery. Who wouldn't have anxiety or be afraid? I have anxiety getting my teeth cleaned in...

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DBS? Scared out of my mind

 I'm almost 10 years since my diagnosis with Parkinson's Disease.  At first Sinemet was the magic fix. One tablet 25/100 brought me back. Then mixing, matching, optimizing meds for the next 10+ years, like playing a carnival game. Where's the neuron. Transmitter or...

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Robin Williams' Son Zak Says His Dad Was 'Very Uncomfortable' and 'Frustrated' Due to Misdiagnosis

Robin Williams' son Zak got candid about the effect of his father's misdiagnosis and how he dealt with the trauma after the actor's death in 2014. Zak, a mental health advocate, spoke with host Max Lugavere on his podcast The Genius Life to discuss Williams' "frustration" and...

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A grant for therapeutic healing with music?

I hope this sincere idea helps the disabled get out of their confinements to enjoy some music and social time around others. I had an idea. Instead of someone living on social security disability checks awkwardly asking venues and musicians for guest list to shows and festivals,...

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Living in Mexico with Parkinson's Disease? Living in MX with any Chronic Illness?

We're serious about moving to Mexico. I watch videos withpositive and negatives, read stories of others experiences but not much including moving with chronic illness.Unfortunately, Parkinson's has gifted me with anxiety about anything new. So to help my spiraling "What If"...

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PD Treatment

Parkinson's Disease can't be cured, but medications can help with the symptoms. In some cases, Deep Brain Stimulation (DBS) surgery may be suggested. Your doctor will probably also recommend lifestyle changes, especially exercise. ]You may find run into some scams online...

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Getting the diagnosis

Years before the movement issues, my symptoms started before anyone would think I might have Parkinson’s Disease (PD). One non-motor symptom at a time. Never connecting the dots. Loss of smell. Constipation. Paranoia. Disproportionate Anger (rage). Choking. Then suddenly...

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