PD Resources

Resources for Parkinson's Disease

Organization: Parkinson's Foundation
Website: parkinson.org (Resources & Support section) Parkinson's Foundation
Contact: Helpline at 1-800-4PD-INFO (473-4636); Helpline@parkinson.org Parkinson's Foundation+1
Summary: Offers a wide range of free resources — educational materials, a PD Library, a hospital safety guide, online/virtual programs, support groups, & community chapters. Also runs “PD Conversations,” an online community forum. Parkinson's Foundation+1

Organization: American Parkinson Disease Association
Website: apdaparkinson.org (National Resources & Support) American Parkinson Disease Association
Contact:
- Phone: 800-223-2732
- Email: apda@apdaparkinson.org
- Key staff contacts include Charlene Allo (Chapter Development), June Colasuonno (Planned Giving), Eloise Caggiano (Media), Elvin Yao (Research), Vanessa Vicente (Spanish Inquiries) American Parkinson Disease Association
Summary: National grassroots network offering patient services, educational programs, local chapters, wellness activities, and research funding. Offers support groups, webinars, online classes, and extensive resource library. Verywell Health+1

Organization: The Michael J. Fox Foundation for Parkinson’s Research
Website: michaeljfox.org michaeljfox.org
Contact:
- General inquiries: info@michaeljfox.org
- Donations: donations@michaeljfox.org
- Fundraising/Team Fox: teamfox@michaeljfox.org
- Grants/research: grants@michaeljfox.org michaeljfox.org
Summary: Focuses on research and accelerating a cure. Offers clinical trial tools (Fox Trial Finder), resources for newly diagnosed individuals, advocacy tools, and community engagement programs. michaeljfox.org+1Wikipedia

Organization: Davis Phinney Foundation
Website: davisphinneyfoundation.org Wikipediadavisphinneyfoundation.org
Contact: (Not listed) — referred via website
Summary: Provides empowering tools to help people with Parkinson’s live well—including webinars, blogs, podcasts, and the “Every Victory Counts®” manual. Focuses on exercise, mental wellness, and quality of life. davisphinneyfoundation.orgWikipedia

Organization: The Cure Parkinson’s Trust (UK-based)
Website: cureparkinsons.org.uk Wikipedia
Contact: CEO Helen Matthews cited as leader Wikipedia
Summary: A UK charity funding clinical research collaborations aimed at discovering new treatments and ultimately a cure. Active in drug development and trial support. Wikipedia

Organization: Parkinson’s Resource Organization
Website: parkinsonsresource.org Parkinson's Resource Organization+1
Contact: (Not listed) — contact via site
Summary: Offers education, support groups, and a comprehensive online directory (Wellness Village) of vetted service providers. Focuses on reducing isolation and empowering caregivers as well. Parkinson's Resource Organization+1