PD Apathy is very real

I brought up Parkinson's Apathy to a group last week and was surprised I received a lot more response than I expected. Just knowing 5 or 10 other people also struggle with PD apathy is reassuring and helps me to not feel so alone with my long list of symptoms. PD apathy is very...

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Pandemic Social Isolation, a familiar feeling

Some of you with chronic illness will relate. When you are forced to stay home due to your illness, cannot make long range plans, often forced to cancel last minute. People do not want to stand too close to you just in case it is contagious.  Assholes talk behind...

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Preparing for a 5K race

I’m preparing for a 5K walk to raise money!  Yesterday on my walk I discovered it’s exactly 5K or 3.1 miles from the apartment to the East River and back.  Today I took a different route only walked about 2.3 miles probably because there were more food options. What...

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Unity Walk

Parkinson's Unity Walk Join thousands of members of the Parkinson’s community as we walk together in New York’s Central Park to raise funds and awareness for research. The 25th Walk will be hed o Saturday April 27, 2019. unitywalk.org#PUW2...

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PD Support Groups

There are PD groups for support. Some specific to YOPD, men, women or care givers.  Get on the mailing lists from the movement disorder department at local medical centers. Search around. I’ve wondered for a long time why there is only one young onset (YOPD) support...

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Getting the diagnosis

Years before the movement issues, my symptoms started before anyone would think I might have Parkinson’s Disease (PD). One non-motor symptom at a time. Never connecting the dots. Loss of smell. Constipation. Paranoia. Disproportionate Anger (rage). Choking. Then suddenly...

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