Afraid to tell people I have PD

Posted on 7/06/2021 07:42:00 AM by  with No comments
 I'm hesitant to share that I have PD with people.  Most or all of my relatives know, a few neighbors and a few friends.  The worst reaction is when friends drop me from their lives like I'm dead or contagious.  Others range from tears, hugs, articles...

PD Medication - Optimizing Gone Wild

Posted on 7/02/2021 12:05:00 AM by  with No comments
 The battle of medications, dosages, frequencies versus PD is an ongoing battle.  My meds and off times went in a spiral in March 2021 right about the time I got the vaccine for COVID-19 (see PD and COVID-19 Vaccine). A coincidence? Maybe. Whatever the cause, I've...

A grant for therapeutic healing with music?

Posted on 6/27/2021 08:59:00 AM by  with No comments
I hope this sincere idea helps the disabled get out of their confinements to enjoy some music and social time around others. I had an idea. Instead of someone living on social security disability checks awkwardly asking venues and musicians for guest list to shows and festivals,...

Amantadine 100mg Capsules ?

Posted on 6/17/2021 03:15:00 PM by  with No comments
 Anything good or bad to share about Amantadine? Besides Rytary's price and failing to last more than 2 hours in my system,  I've been having off-times and dosage failures with Rytary.  So I switched back to Sinemet and the MDS added Amantadine which...

Living in Mexico with Parkinson's Disease? Living in MX with any Chronic Illness?

Posted on 6/17/2021 02:51:00 PM by  with No comments
We're serious about moving to Mexico. I watch videos withpositive and negatives, read stories of others experiences but not much including moving with chronic illness.Unfortunately, Parkinson's has gifted me with anxiety about anything new. So to help my spiraling "What If"...

PD and COVID-19 Vaccine

Posted on 5/06/2021 10:54:00 PM by  with No comments
I have to start with, "I'm not a doctor and any mention of medical or science is my opinion"About 4 weeks ago I received the second COVID-19 vaccination. My memory of events may be a bit hazy, but it seems like the effectiveness of my Parkinson's medications changed shortly...
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