DBS? Courage. A second chance to live

Posted on 8/05/2021 12:04:00 PM by  with No comments
DBS is on my mind. I am slowly inching towards the deep brain stimulation. Everyone I speak with has encouraging words.  I MAY BE SCARED. I MAY HAVE ANXIETY. It's freakin' brain surgery. Who wouldn't have anxiety or be afraid? I have anxiety getting my teeth cleaned in...

DBS? Scared out of my mind

Posted on 7/24/2021 10:12:00 AM by  with 2 comments
 I'm almost 10 years since my diagnosis with Parkinson's Disease.  At first Sinemet was the magic fix. One tablet 25/100 brought me back. Then mixing, matching, optimizing meds for the next 10+ years, like playing a carnival game. Where's the neuron. Transmitter or...

Robin Williams' Son Zak Says His Dad Was 'Very Uncomfortable' and 'Frustrated' Due to Misdiagnosis

Posted on 7/22/2021 06:08:00 AM by  with No comments
Robin Williams' son Zak got candid about the effect of his father's misdiagnosis and how he dealt with the trauma after the actor's death in 2014. Zak, a mental health advocate, spoke with host Max Lugavere on his podcast The Genius Life to discuss Williams' "frustration" and...

Afraid to tell people I have PD

Posted on 7/06/2021 07:42:00 AM by  with No comments
 I'm hesitant to share that I have PD with people.  Most or all of my relatives know, a few neighbors and a few friends.  The worst reaction is when friends drop me from their lives like I'm dead or contagious.  Others range from tears, hugs, articles...

PD Medication - Optimizing Gone Wild

Posted on 7/02/2021 12:05:00 AM by  with No comments
 The battle of medications, dosages, frequencies versus PD is an ongoing battle.  My meds and off times went in a spiral in March 2021 right about the time I got the vaccine for COVID-19 (see PD and COVID-19 Vaccine). A coincidence? Maybe. Whatever the cause, I've...

A grant for therapeutic healing with music?

Posted on 6/27/2021 08:59:00 AM by  with No comments
I hope this sincere idea helps the disabled get out of their confinements to enjoy some music and social time around others. I had an idea. Instead of someone living on social security disability checks awkwardly asking venues and musicians for guest list to shows and festivals,...
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