Here I share my experiences with Parkinson's Disease and along the way I'll share some interesting tips I come across and occasionally add some of the music that moves me. Hopefully something I share helps others dealing with their own PD battle. I was diagnosed with Young Onset Parkinson's Disease YOPD in my 40s and learned a lot on the illness. Remember that everyone experiences YOPD or PD differently, what helps one person may not help another person with the same diagnosis.
🎵 Samba, Stiffness, and Surprising Hope: How Rhythm Is Helping People with Parkinson’s
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Researchers at Cardiff University are hoping to launch a study to discover if there is clinical evidence that drumming classes are improving the lives of Parkinson’s disease patients.
Parkinson’s disease is more than just a tremor. It’s a slow, exhausting loss—of movement, balance, speech, even parts of the mind. It creeps in, day by day, because the brain is losing nerve cells that make dopamine—a chemical that helps control both motion and mood.
That’s why people with Parkinson’s often struggle with walking, standing up, or simply turning around. Some experience sudden “freezing,” where their feet won’t move at all, especially in tight spaces like doorways. Over time, many also face memory problems and cognitive decline from Parkinson’s-related dementia.
But in a quiet corner of Wales, something unexpected is helping: samba music.
Sparky Samba: Finding Rhythm in a Body That’s Lost It
Eirwen Malin knows Parkinson’s disease firsthand. She lives with it. After her son attended a samba concert, she had a thought—what if rhythm could help others like her regain some control?
“A big issue for people with Parkinson's is they sort of lose that sense of rhythm,” Malin says. “They lose the rhythm of walking. Some people freeze—they just can’t go anywhere.”
So she started a small samba drumming group. She called it Sparky Samba and shared the idea on Twitter. The response was overwhelmingly positive.
What began as a single class has now expanded across Wales, thanks to local support and government funding. Over the past year, participants say they’ve noticed real improvements—not just in movement, but in mood and motivation.
Brian Dews, one of the drummers, puts it plainly:
“Before samba, I was struggling to get out of a chair. At least I’m a bit more mobile now. Not quite so stiff. I think without samba, I’d be struggling a lot more.”
Is There Science Behind the Beat?
Researchers at Cardiff University want to find out. They're preparing a clinical study to see if there’s real evidence that samba and rhythm are helping people with Parkinson’s.
Cheney Drew, who works on drug trials at the university, says this study is about more than just drumming—it’s about how the brain responds to rhythm.
“There’s a phenomenon called rhythmic auditory stimulation,” she explains. “It’s been shown to improve the way the brain talks to itself—the way messages get relayed.”
Could drumming act like a jumpstart for the brain's pathways? Maybe. But researchers also think the social side of the class—laughing, moving, and playing music together—might play a role too.
“We need to tease out what’s really helping,” Drew says. “Is it the rhythm? The movement? The group support? All of it together?”
The study will measure things that really matter to patients—like whether they freeze less often while walking, or feel a better sense of well-being. It won’t rely on dopamine levels or brain scans. Instead, it’ll track how Parkinson’s actually affects everyday life.
The study is expected to take 12 to 18 months.
The Bigger Picture: A Growing Global Crisis
According to the World Health Organization, Parkinson’s is now one of the fastest-growing neurological disorders worldwide. In just 25 years, the number of people living with it has doubled.
In 2019, at least 8.5 million people were living with Parkinson’s. More are becoming disabled. More are dying.
And yet, treatments are still limited. Most focus on managing symptoms—not slowing or stopping the disease. That’s why innovations like Sparky Samba matter. They remind us that healing doesn’t always have to come from a pill. Sometimes, it can come from a drumbeat. From movement. From music. From community.
What You Can Do
If you or someone you love is living with Parkinson’s, consider exploring rhythm-based therapy—dance, drumming, even walking to a beat. You don’t need to be a musician. You don’t even need to stand.
Start small. Stay curious. Keep moving—however you can.
And above all: don’t underestimate the power of joy in a room full of rhythm.
At first, I didn’t want to tell anyone. When I was diagnosed with Parkinson’s disease, it felt like a private earthquake—my world shifted, but from the outside, everything looked the same. I thought if I just carried on as usual, maybe people wouldn’t notice. But Parkinson’s has a way of showing itself. The the frozen face, the slow movements, the voice that gets softer without me realizing it—it all adds up. Eventually, people began to ask if I was okay. That’s when I started telling the truth, at least privately to closer friends and family. I’d try to sound calm, even casual. “Yeah, I’ve got Parkinson’s,” I’d say, “but I’m doing all right.” I didn’t want sympathy or a sad look. I just wanted people to understand. Most of them reacted kindly. They said things like, “You’re strong.” “You’ll beat this.” “Let me know if you need anything.” And they meant it—at least in that moment. But as time went on, the calls slowed down. The texts got shorter. Invitations stopped coming. It’s not th...
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