Any GOCOVRI success stories?

The last two visits to my movement disorder specialist (MDS) each had a new doctor. Each doctor stopped previous med and started another.  Meds not optimized. Major off times.  8/12/2024 — The latest doctor thinks a new medication GOCOVRI will help with the off...

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Wake Up Brain, Wake Up

Sometimes it feels like a part of my brain is asleep. It isn't talking or listening to me. The meds didn't kick in properly or sometimes at all.  I want to move an arm or leg or my hand to get leverage to pull myself up. Nothing, not even in my finger. I...

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Neurologist explains symptoms of Parkinson's Disease

The doctor being interviewed explains the hallmark signs of Parkinson's Disease. Also a commenter on the video was really informative - detailing what the "on/off" experience is like, and how unpredictable it is.  Dr. Tom Pitts, a board-certified neurologist, speaks with...

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Congress Passed the National Plan to End Parkinson's Act

Big news just in from Michael J. Fox foundationThe U.S. Senate today unanimously passed the National Plan to End Parkinson’s Act, the first-ever federal legislation dedicated to ending Parkinson’s disease, sending the bill to President Biden’s desk to be signed into law. The...

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PD Quick Tip - Falling?

Am I a klutz or is it a PD fall? I've fallen down a few times while out walking, five times to be exact. Three of the 5 times happened when I tripped over sidewalk hazards in New York City. Fortunately only one of these falls resulted in broken eyeglasses, multiple cuts...

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I Won't Back Down (song)

I woke up at 4am with this song in my head. Well, I won't back down, no I won't back downYou can stand me up at the gates of HellBut I won't back downGonna stand my ground, won't be turned aroundAnd I'll keep this world from draggin' me downGonna stand my ground and I won't...

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PD Open Message on Facebook

I've been going back and forth whether I wanted to 'go public' with the news of having Parkinson's.  This week, after a lot of thought, I did it. And received so much positive support from Facebook friends. No regrets.   Here is what I posted to my Facebook timeline.I'm...

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Potential Benefits of Samba Drumming for Parkinson's

Researchers at Cardiff University are hoping to launch a study to discover if there is clinical evidence that drumming classes are improving the lives of Parkinson’s disease patients.A special samba drum class has been a refuge for Parkinson’s disease patients in Wales where...

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