PD Open Message on Facebook

I've been going back and forth whether I wanted to 'go public' with the news of having Parkinson's.  This week, after a lot of thought, I did it. And received so much positive support from Facebook friends. No regrets.   Here is what I posted to my Facebook timeline.I'm...

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Keep Me In Your Heart (song)

The music is not specific to PD. I'm a music fan and some mornings I share a few songs.This morning I'm just feeling invisible, misunderstood and missing. Friends have moved on with their lives,With a look of ease drawn on my face, it's easy to misread my feelings as lack of...

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Have you told friends and family or accepted help with expenses?

I'm not very comfortable discussing Parkinson's with close friends and family. Many friends don't ask.They talk to each other, word gets out that I have "something wrong". Friends I do tell? They drift away and say to each other they think I had a stroke, or something. Online...

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How to help loved ones with chronic illnesses enjoy the holidays

How to help loved ones with chronic illnesses enjoy the holidays [The Washington Post] For many people with chronic illnesses, the holidays can be a lonely and exhausting time. Health limitations may keep them from joining celebrations, and participating in the festivities...

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Fundraiser for Parkinson's Unity Walk (Facebook fundraising)

I am raising money for the Parkinson's Unity Walk via Facebook fundraising.  I've chosen this nonprofit because their mission spreads awareness of Parkinson's Disease and distributes to the research organizations listed below. I hope you'll consider contributing. Every...

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Meds Adjusted and actually feeling a bit better, for now

A few meds changed or added seem to be helping me. Never follow my medical scribblings, consult your doctor before changing or stopping any medications.Changed first dosage of the day of carbidopa/levodopa (C/L), here's what I'm doing... instead of one and a half pills...

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Afraid to tell people I have PD

 I'm hesitant to share that I have PD with people.  Most or all of my relatives know, a few neighbors and a few friends.  The worst reaction is when friends drop me from their lives like I'm dead or contagious.  Others range from tears, hugs, articles...

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