Meds Adjusted and actually feeling a bit better, for now

Posted on 11/13/2021 07:38:00 AM by  with No comments
A few meds changed or added seem to be helping me. Never follow my medical scribblings, consult your doctor before changing or stopping any medications.Changed first dosage of the day of carbidopa/levodopa (C/L), here's what I'm doing... instead of one and a half pills...

DBS? Courage. A second chance to live

Posted on 8/05/2021 12:04:00 PM by  with No comments
DBS is on my mind. I am slowly inching towards the deep brain stimulation. Everyone I speak with has encouraging words.  I MAY BE SCARED. I MAY HAVE ANXIETY. It's freakin' brain surgery. Who wouldn't have anxiety or be afraid? I have anxiety getting my teeth cleaned in...

DBS? Scared out of my mind

Posted on 7/24/2021 10:12:00 AM by  with 2 comments
 I'm almost 10 years since my diagnosis with Parkinson's Disease.  At first Sinemet was the magic fix. One tablet 25/100 brought me back. Then mixing, matching, optimizing meds for the next 10+ years, like playing a carnival game. Where's the neuron. Transmitter or...

Robin Williams' Son Zak Says His Dad Was 'Very Uncomfortable' and 'Frustrated' Due to Misdiagnosis

Posted on 7/22/2021 06:08:00 AM by  with No comments
Robin Williams' son Zak got candid about the effect of his father's misdiagnosis and how he dealt with the trauma after the actor's death in 2014. Zak, a mental health advocate, spoke with host Max Lugavere on his podcast The Genius Life to discuss Williams' "frustration" and...

Afraid to tell people I have PD

Posted on 7/06/2021 07:42:00 AM by  with No comments
 I'm hesitant to share that I have PD with people.  Most or all of my relatives know, a few neighbors and a few friends.  The worst reaction is when friends drop me from their lives like I'm dead or contagious.  Others range from tears, hugs, articles...

PD Medication - Optimizing Gone Wild

Posted on 7/02/2021 12:05:00 AM by  with No comments
 The battle of medications, dosages, frequencies versus PD is an ongoing battle.  My meds and off times went in a spiral in March 2021 right about the time I got the vaccine for COVID-19 (see PD and COVID-19 Vaccine). A coincidence? Maybe. Whatever the cause, I've...
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